It is with pleasure that we invite you to attend the inaugural MND New Zealand Research Conference, to be held at The Cordis Hotel, Auckland, on Monday the 9th of December, 2019. This is your opportunity to hear the latest updates from internationally recognised experts in MND clinical research, and discover what research is taking place right here in New Zealand.
The objectives of the conference are:
The MND New Zealand Research Conference is being run in association with the New Zealand MND Research Network, and will bring together a multidisciplinary group of researchers, specialists, nurses, allied health professionals, students, and community workers, all of whom have an interest in working towards a better future for people living with motor neurone disease (MND). We anticipate that more than 150 delegates will attend.
Online Registration is now CLOSED
On behalf of the organising committee, we look forward to welcoming you to Auckland.
Dr Claire Reilly – Community and Research Advisor, MND New Zealand
Lydia Everhart – Manager, New Zealand MND Research Network
Meet the Speakers
Our International and local presenters are:
The MND New Zealand Research Conference will include the following sessions:
Session One: Understanding and diagnosing MND
Session Two: Caring for and supporting those with MND
Each session will be followed by a 15-minute Q&A with the panel.
The conference will run from 8.30am–5.30pm.
The programme is evolving, so watch this space as the organising committee develops a comprehensive series of presentations to motivate and inspire you.
Morning tea, lunch, and afternoon tea are included in the registration fee. You will have opportunities to meet the experts and to network with your colleagues.
|9:00 - 9:10am||Welcome|
|9:10-9:20am||Opening Address by Distinguished Professor Sir Richard Faull|
|SESSION 1: Understanding and diagnosing MND|
|9:20-9:45am|| Professor Orla Hardiman|
What is ALS and why is it so difficult to find effective treatments?
|9:45-10:05am|| Grace Chen|
Self-reported occupational exposures and MND in New Zealand
|10:05am - 10:30am|| Professor Martin Turner|
The importance of biomarkers
|10:30 - 10:55am||Morning Tea|
|10:55-11:15am|| Dr. Emma Scotter|
The blood-brain and blood-spinal cord barriers in ALS: lessons from human cells and tissues
|11:15 - 11:40am|| Professor Chris Shaw|
Gene Therapy for MND: Are we there yet?
|11:40 - 11:55am|| Associate Professor Richard Roxburgh|
New Zealand MND Registry
|11:55 - 12:20pm|| Dr. Angela Genge|
Clinical Trial activity in ALS internationally: Where are we now?
|12:20-12:30pm||Session 1 Q&A|
|SESSION 2: Caring for and supporting those with MND|
|1:30-1:55pm|| Associate Professor Paul Talman|
Motor Neurone Disease: Patient centred care for a progressive neurological disease - evidence driving policy
|1:55-2:20pm|| Professor Chris McDermott|
Developing the evidence base for symptomatic care
|2:20-2:45pm|| Sarah Solomon|
OT for people with MND: Adjusting and adapting to rapidly changing function
|2:45-3:05pm|| Professor Alister Neill|
Community-based non-invasive ventilation (NIV) as an effective treatment for chronic respiratory failure in neuromuscular disease
|3:30-3:50pm|| Dr. Anna Miles|
Motor Neurone Disease: the changing role of speech therapy
|3:50-4:10pm|| Dr. Dean Sutherland|
Communication best practice and voice banking technology
|4:10-4:35pm|| Professor David Oliver|
The role of palliative care for MND
|4:35-4:45pm||Session 2 Q&A|
|4:45-5:20pm|| Keynote Address: Professor Ammar Al-Chalabi|
MND – where do we go from here?
Renovated and rebranded in 2017, Auckland’s Cordis Hotel is located in the lively uptown area near Upper Queen Street and Karangahape Road, and is within walking distance of the city’s museum, galleries, and shops. The venue is wheelchair accessible.