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Monday 9th December 2019 | Auckland

Speaker Mndregister

NZ MND Registry

NZ MND Registry

The New Zealand Motor Neurone Disease Registry was established in May 2017 to facilitate participation in research and clinical trials for people with MND. The Registry collects health and demographic information about its participants in order to be trial ready.

Over 300 people are living with MND at any one time in New Zealand. The Registry aims to capture information about every person with MND in New Zealand, to answer questions about how many people have MND in different areas, how the condition progresses, and how the disease can affect people.

Over time, the Registry it will facilitate the growth of the MND research field in New Zealand by enabling researchers to find study participants quickly and easily. The MND Registry will also provide valuable information to guide the future development of support services.

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